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Mariangela Lupo
Communication and Patient Advocacy Manager at TEDDY European Network of Excellence for Paediatric Research, Italy

Profile

Patients Advocacy Manager at TEDDY European Network of Excellence for Paediatric Research and responsible for the development and organization of educational materials and activities for paediatric patients in the EJPRD (European Joint Programme for Rare Diseases) project.

Head of the Development and Networking Area at Consorzio per Valutazioni Biologiche e Farmacologiche (CVBF) and Team Leader of KIDS Bari, the first Young Persons Advisory Group in Italy.
Networking Manager of the H2020 ID-EPTRI (European Paediatric Translational Research Infrastructure) project; member of the Public Patients Involvement (PPI) team in c4c (conect4children) project. Member of Working Parties of Enpr-EMA at EMA (Young Patients Advisory Groups; Training) and member of the Working Groups Communication and Events & Training at EUCROF (European CRO Federation).

Agenda Sessions

  • The Patient Centricity Effect – How it benefits Patients, Sites and Sponsors – Practical cases from paediatric studies

    14:45
  • LIVE Panel, Q&A and Audience Interaction: KPI’s (Key Performance Indicator) - Quality assessment if undertaking patient engagement correctly?

    11:05
  • LIVE Panel, Q&A and Audience Interaction: KPI’s (Key Performance Indicator) - Quality assessment if undertaking patient engagement correctly?

    11:05