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PAP Conference 2025 – Patient Assistance & Access Programs

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March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA
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Pre-Conference Workshops - EST/EDT (Eastern Daylight, GMT-4)

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Pre-Conference Workshops - EST/EDT (Eastern Daylight, GMT-4)

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12:00pm - 1:00pm
Pre-Conference Workshop and Registration
Attendees Choose Between 3 Pre-Conference Workshops (Add-Ons)
Showing 3 of 3 Streams
1:00pm - 3:00pm
Advocacy and Engagement
  • Jennifer Helfer - Senior Director, Patient Advocacy & Engagement, Corporate Affairs, Viridian Therapeutics, Inc.
  • Elsa Lavita - Director, Patient Advocacy, MorphoSys
  • Mary Anne Meskis - Executive Director, Dravet Syndrome Foundation
  • Amanda Moore - CEO, Angelman Syndrome Foundation
  • Ryan Sheedy - n/a, Rare Disease Parent and Caregiver
  • Paul Melmeyer - Vice President, Public Policy and Advocacy, Muscular Dystrophy Association
  • Rebecca Stewart - CEO, Rare Revolution Magazine
1:00pm - 3:00pm
Alternative Funding Programs
  • Dawn Holcombe, MBA FACMPE ACHE - President, DGH Consulting
  • Liz Austin - Patient Foundation Head, Genentech
  • Amy Niles - Chief Mission Officer, PAN Foundation
1:00pm - 3:00pm
Product Launch and Commercialization
  • Frank Jaeger - Consultant, Nanodose Therapeutics, Inc.
  • Rhonda Hughes - Head of Patient Services Operations, Biogen
  • Kelley O'Leary - Director of New Product Planning, Innovation and Strategy Patient Services, Biogen
3:00pm - 3:30pm
Networking & Refreshment Break
Showing 3 of 3 Streams
3:30pm - 5:00pm
Advocacy and Engagement
  • Jennifer Helfer - Senior Director, Patient Advocacy & Engagement, Corporate Affairs, Viridian Therapeutics, Inc.
  • Elsa Lavita - Director, Patient Advocacy, MorphoSys
  • Mary Anne Meskis - Executive Director, Dravet Syndrome Foundation
  • Amanda Moore - CEO, Angelman Syndrome Foundation
  • Ryan Sheedy - n/a, Rare Disease Parent and Caregiver
  • Paul Melmeyer - Vice President, Public Policy and Advocacy, Muscular Dystrophy Association
  • Rebecca Stewart - CEO, Rare Revolution Magazine
3:30pm - 5:00pm
Alternative Funding Programs
  • Dawn Holcombe, MBA FACMPE ACHE - President, DGH Consulting
  • Liz Austin - Patient Foundation Head, Genentech
  • Amy Niles - Chief Mission Officer, PAN Foundation
3:30pm - 5:00pm
Product Launch and Commercialization
  • Frank Jaeger - Consultant, Nanodose Therapeutics, Inc.
  • Rhonda Hughes - Head of Patient Services Operations, Biogen
  • Kelley O'Leary - Director of New Product Planning, Innovation and Strategy Patient Services, Biogen
5:00pm - 5:05pm
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