This site is part of the Informa Connect Division of Informa PLC

This site is operated by a business or businesses owned by Informa PLC and all copyright resides with them. Informa PLC's registered office is 5 Howick Place, London SW1P 1WG. Registered in England and Wales. Number 3099067.

September 23, 2021
Delivered Digitally

September 23, 2021
Delivered Digitally

Inspire. Connect. Advance.

Selections from The DISORDER Channel features a curated lineup of short films addressing the day-to-day challenges and struggles of rare disease patients and their families.

Registration is now closed but you can still join the event.

Join the live event

Digital event platform:

Copy and paste the link below to join the event.

Selections from The DISORDER Channel at Biotech Week Boston

Join us for what might be the most inspiring event you ever attend. Here is what you can expect:

Panel discussion

Stakeholder Collaboration for Advancing Therapeutic Progress, Improving Access and Spreading Awareness

  • Understand the importance for multi-faceted participation in driving innovation to cure rare diseases
  • Drive partnerships with industry, advocates, CROs, patients, families and more to accelerate treatments
  • Hear stories of the impact of collaboration at the personal level
  • Consider the short term and long-term effects of future, heightened multi-stakeholder involvement in creating transformative breakthroughs

Featured Films

The featured films will be screened in the following two tracks:

Chasing Cures – Parents Fighting for Progress, Awareness and Advocacy

Siblings Supporting Siblings – Stories of Empathy and Understanding


There will be a networking break in between the tracks of featured films to allow for film discussion. 

September 23, 2021
Delivered Digitally

Demonstrate your Patient Advocacy leadership

Partner and build a connection with the biotech community working on solutions to rare diseases.

September 23, 2021
Delivered Digitally

Biotech Week Boston

The biotech event accelerating fresh ideas, partnerships and opportunities

Be a part of this unique experience spanning the drug development value chain, giving you access to the most innovative scientific minds and business leaders in Boston and around the world.