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September 23, 2021
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Film Festival - EST/EDT (Eastern Daylight, GMT-4)

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Film Festival - EST/EDT (Eastern Daylight, GMT-4)

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3:30pm - 3:35pm5 mins
Chairperson's Welcome and Opening Remarks
  • Bo Bigelow - Co-Founder, DISORDER: The Rare Disease Film Festival
3:35pm - 4:20pm45 mins
Panel Discussion
  • Bo Bigelow - Co-Founder, DISORDER: The Rare Disease Film Festival
  • Katherine Beaverson - Senior Director and Patient Advocacy Lead, Rare Disease Research Unit, Pfizer
  • Julia Carpenter-Conlin - Senior Director, Patient Advocacy, Apellis Pharmaceuticals
  • Jocelyn Duff - Founder & CEO, CureCMT4J
  • Michele Rhee - Vice President, Patient Affairs and Advocacy, X4 Pharmaceuticals
4:20pm - 5:20pm60 mins
Featured Films
    5:20pm - 5:50pm30 mins
    Networking and Film Discussion
      5:50pm - 6:25pm35 mins
      Featured Films
        6:25pm - 6:30pm5 mins
        Chairperson's Closing Remarks
        • Bo Bigelow - Co-Founder, DISORDER: The Rare Disease Film Festival
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