Coming May 2023
Boston, MA

Inspire. Connect. Advance.

Viewing of Films

Selections from The DISORDER Channel features a curated lineup of short films addressing the day-to-day challenges and struggles of rare disease patients and their families.

Selections from The DISORDER Channel

Thank you to those who joined us in 2022! Here's a snapshot of what attendees experienced:

Watch and Wonder: Featured Films

Embracing Connections to Create Awareness, Hands-on Advocacy and Hope:

· Tess is Not Alone: A USP7 Story

· Timothy Syndrome Alliance

· Menkes Disease: Finding Help and Hope

· Suellen's Story

Fighting for Progress through Science, Diagnosis, and the Research Community:

· YBRP and the Quest to a Cure

· Quest for a Cure

· Counting Every Second

Learn More

Connect and Converse: Networking Opportunities

There will be a networking reception following the viewing of films.

Create Life Transforming Breakthroughs: Rare Disease Summit

Your registration to the film viewing is complimentary with a registration to the Rare Disease Innovation & Partnering Summit, being held in Boston.