Coming May 2023
Inspire. Connect. Advance.
Viewing of Films
Selections from The DISORDER Channel
Thank you to those who joined us in 2022! Here's a snapshot of what attendees experienced:
Watch and Wonder: Featured Films
Embracing Connections to Create Awareness, Hands-on Advocacy and Hope:
· Tess is Not Alone: A USP7 Story
· Timothy Syndrome Alliance
· Menkes Disease: Finding Help and Hope
· Suellen's Story
Fighting for Progress through Science, Diagnosis, and the Research Community:
· YBRP and the Quest to a Cure
· Quest for a Cure
· Counting Every Second
Connect and Converse: Networking Opportunities
There will be a networking reception following the viewing of films.
Create Life Transforming Breakthroughs: Rare Disease Summit
Your registration to the film viewing is complimentary with a registration to the Rare Disease Innovation & Partnering Summit, being held in Boston.