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Rare Disease Innovation & Partnership Summit
March 21-23, 2023
Delivered as a Hybrid EventPhiladelphia Marriott Downtown

Eimile McKinnon
Young Adult Rare Representative at EveryLife Foundation for Rare Diseases


Eimile McKinnon grew up in the Pittsburgh area. Her lifelong interest in the natural sciences and public health led her to study Environmental Biochemistry and receive a B.S from Juniata College in Huntingdon, PA. Her next educational aspiration is to earn a PhD in Environmental Toxicology. As a rare disease patient and graduate of the Young Adult Rare Representatives (YARR) Leadership Academy, she is incredibly passionate about advocacy and awareness of rare conditions.

Agenda Sessions

  • The Importance of Young Adult Involvement and Advocacy in Healthcare


Speakers at this event