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Rare Disease Innovation & Partnership Summit
March 21-23, 2023
Delivered as a Hybrid EventPhiladelphia Marriott Downtown

Nicola Miller
Creative Director & Editor-in-Chief at RARE Revolution Magazine

Profile

Nicola Miller is co-founder and editor-in-chief of RARE Revolution Magazine, a dedicated magazine and platform for the rare disease community. With a strong background in design and a passion for writing, Nicola is the driving force behind our creative vision, and uses her strategic experience in large-scale project planning to oversee our varied work, including RARE Youth Revolution. Nicola is also co-founder and trustee of the charity Action for XP, volunteering her time to drive forward their mission—supporting families living with the ultra-rare condition xeroderma pigmentosum. Nicola is also author of the award-winning rare disease children’s book series, Little Ted.

Agenda Sessions

  • Rare Disease Awareness—Delivering Authentic Lived Experiences in a Challenging Regulatory Landscape

    11:35am

Speakers at this event