Ataxia UK: Taking a patient-centric approach to curing rare disorders
The ataxias are a group of rare neurological disorders that affect speech and movement. The Specialist Ataxia Clinic in London - accredited by the charity Ataxia UK - combines cutting-edge research with a patient-centric approach to care for those affected by the disorder.
We visited the clinic and spoke to five of the people working with Ataxia UK, including the Head of the Specialist Ataxia Clinic Dr Paola Giunti, as well as a patient and volunteers.
Ataxia UK spoke at Partnerships in Clinical Trials Europe 2016.