Lydia Anderson

Co-Founder at ACTA2 Alliance

Speaker

Lydia Anderson is a physical therapist, nonprofit cofounder, mother, and rare disease advocate whose life was transformed by her son Raistlin’s ultra-rare genetic condition. Through her family’s experience, she offers a firsthand perspective on the urgent need for effective treatments, including gene therapy, and the real-world impact of delayed progress. Lydia shares a perspective rooted in both challenge and hope.