Mary Anne MeskisExecutive Director at Dravet Syndrome FoundationSpeaker
Mary Anne is a founding member and the Executive Director of the Dravet Syndrome Foundation. She is a passionate advocate for the Dravet syndrome and rare epilepsy communities and has served on various working groups and industry advisory panels since her son was first diagnosed in 2004. While under her direction, DSF has placed a focus on research, as well as patient community engagement and education. She currently resides in western North Carolina with her husband and the youngest of her three children, Elliot, who has Dravet syndrome.