Tricha Shivas

Chief of Staff and Strategy at Foundation for Sarcoidosis Research

Speaker

Tricha Shivas joined the Foundation for Sarcoidosis Research (FSR) in December of 2020. As the Chief of Staff and Strategy, she works with various stakeholders including individuals living with sarcoidosis and their loved ones, academic researchers, clinicians, industry partners, regulators and policy-makers to advance FSR’s mission to support patients and accelerate sarcoidosis research in the search for a cure.

Tricha is a collaborative and strategic leader with over 15 years of non-profit results-driven experience. Tricha has dedicated her career to improving the lives of those with complex chronic illness and rare diseases. Tricha has served patients in her roles with the Washington Regional Transplant Community, The Muscular Dystrophy Association (MDA), The National Quality Forum (NQF), WomenHeart - the National Coalition for Women with Heart Disease, and The Myositis Association (TMA). In these roles, she helped build comprehensive patient engagement and awareness programming, developed robust diversity, inclusion, and equity programming, worked with the NIH, FDA, and industry to expand therapeutic pipelines and to increase patient centricity in drug develop, and worked with the CDC, HHS, regulators, and state and federal legislators to improve national health policy strategies, patient access to care, and healthcare quality measures.

Tricha received her bachelors in American Studies from Albright College and her Masters of Bioethics from University of Pennsylvania. She currently serves on Drexel University’s Health Administration Department Advisory Council and Global Skin’s Rare Disease Steering Committee.