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Pre-Conference Workshops - EST/EDT (Eastern Daylight, GMT-4)
Strategize on best practices in collaborating with hospital systems and research organizations to advance access and treatment development.
Uncover specific challenges and success stories in funding clinical trials and research through a consortium of pediatric hospitals across the country.
Learn more about the TORCH initiative, its $2 million annual funding goal and how it is creating innovation at both the hospital and local level.
- Erin Santos-Primis - President, Isabella Santos Foundation
This session provides an in depth guide on how to narrate personal medical stories including the unique experiences with rare diseases. The focus will be on utilizing different mediums such as blogs, podcasts, social media, videos, and in-person interactions for storytelling.
- Equip patients and advocacy leaders with more skills and confidence to share their medical journeys and those of their community
- Raise Awareness: Highlight the importance and impact of sharing personal medical stories, particularly those involving rare diseases, to raise funds, awareness, and advocate for better healthcare and health policies
- Maximize Reach: Explore various platforms and strategies for storytelling and provide tips on how to tailor the narrative to each medium for maximum impact
- Daniel DeFabio - Director, Community Engagement, Global Genes
This session explores the rise of AFPs and specialty carve Outs, analyzing how these programs affect the pharmaceutical landscape, patient affordability and access to specialty medications. Speakers will discuss the legal, regulatory and financial ramifications that AFPs pose for consumers and employers and provide insight on potential regulatory efforts that can mitigate the impact of these programs.
- Ashira Vantree - Director Legal Strategy & Advocacy, Aimed Alliance
- Jonathan James - Chief Executive Officer, Hope Charities
Explore how pharma can utilize EHR systems to gain deeper market insights, streamline payer negotiations and enhance real-world evidence for drug access strategies
Leverage EHR data to support reimbursement, improve formulary positioning and foster collaborations with healthcare providers for better commercial outcomes
Foster stronger collaboration between pharma and payers to eliminate redundancies, reduce administrative burdens and enhance the efficiency of patient navigation
Evaluate a unified digital health approach to improve adherence, streamline communication and ensure quicker access to therapies, ultimately driving better patient outcomes
Break down barriers between pharma, payers and healthcare providers, creating a frictionless experience that accelerates treatment access and improves the patient journey from diagnosis to therapy
Discuss working with ambassador programs, engagement campaigns and efforts to increase community involvement
Establish strong advocate networks and create communication strategies that resonate with communities
Understand how to balance long-term planning with need for nimble, real-time response to critical issues
- Michele Guadalupe - Director, Advocacy and Access, National Eczema Association
As AFPs increasingly divert patients away from traditional coverage models, pharmaceutical companies must develop strategies to safeguard patient access to essential treatments. This session focuses on building robust patient assistance programs, collaborating with payers and ensuring compliance, while addressing the challenges posed by specialty carve outs, including how AFPs are evolving their business models and tactics based on observations.
- Liz Austin - Patient Foundation Head, Genentech
Capitalize on EHR data to refine their commercial strategies and optimize market entry and expansion efforts
Focus on how integrating EHR insights into market access planning can help forecast demand, identify treatment gaps and provide data-driven support for pricing, contracting and distribution strategies
- Robert Britting - Senior Director, US Customer Marketing, Vaccines Franchise, GSK