Monday, March 17th, 2025 — Pre-Conference Workshops - EST/EDT (Eastern Daylight, GMT-4)
Strategize on best practices in collaborating with hospital systems and research organizations to advance access and treatment development
Uncover specific challenges and success stories in funding clinical trials and research through a consortium of pediatric hospitals across the country
Learn more about the TORCH initiative, its $2 million annual funding goal and how it is creating innovation at both the hospital and local level
- Erin Santos Primis - President, Isabella Santos Foundation
- Andrew Satterlee, PhD - Assistant Professor, Director of the Screening Live Cancer Explants Program, University of North Carolina at Chapel Hill
- Erin Finucane - Founder, Erin Finucane & Co
This session explores the rise of AFPs and specialty carve-outs, analyzing how these programs affect the pharmaceutical landscape, patient affordability and access to specialty medications. Discuss the legal, regulatory and financial ramifications, offering strategies for pharmaceutical companies to challenge these programs and protect market share.
- Jonathan James - Chief Executive Officer, Hope Charities
Join us for an enlightening session exploring the cutting-edge approaches and collaborative efforts driving advancements in rare disease management. This session kicks off the workshops to better understand the patient journey and delves into how technology and innovation are reshaping the landscape of rare disease care, from diagnosis to treatment and beyond.
- Explore how technology is breaking down barriers to treatment access, addressing challenges such as geographical limitations and insurance hurdles
- Learn about cutting-edge solutions improving coordination among diverse care teams, ensuring comprehensive patient support
- Uncover how digital innovations are alleviating isolation, providing resources, and creating supportive communities for rare disease patients
- Gain insights into the application of augmented reality, blockchain, and gamification in rare disease management and research
- Pramod Rao - Associate Director, Data & AI, Alexion, AstraZeneca Rare Disease Unit
- Foster stronger collaboration between pharma and payers to eliminate redundancies, reduce administrative burdens and enhance the efficiency of patient navigation
- Evaluate a unified digital health approach to improve adherence, streamline communication and ensure quicker access to therapies, ultimately driving better patient outcomes
- Break down barriers between pharma, payers and healthcare providers, creating a frictionless experience that accelerates treatment access and improves the patient journey from diagnosis to therapy
- Sam Dix - Co-Head of Startup Studio, Cornell Tech
Discuss working with ambassador programs, engagement campaigns and efforts to increase community involvement
Establish strong advocate networks and create communication strategies that resonate with communities
Understand how to balance long-term planning with need for nimble, real-time response to critical issues
- Michele Guadalupe - Director of Advocacy and Access, National Eczema Association
As AFPs increasingly divert patients away from traditional coverage models, pharmaceutical companies must develop strategies to safeguard patient access to essential treatments. This session focuses on building robust patient assistance programs, collaborating with payers and ensuring compliance, while addressing the challenges posed by specialty carve-outs, including how AFPs are evolving their business models and tactics based on observations.
- Rachel Klein - Deputy Executive Director, The AIDs Institute
- Kevin Herwig - Health Policy Manager, HIV + Hepatitis Policy Institute
**Attendee qualification and approval for this session is at the discretion of Informa Connect.
Participants engage in a structured brainstorming session to:
- Identify key challenges and barriers to healthcare delivery, access and patient support as discussed earlier in the workshop
- Generate innovative solutions using AI and emerging technologies, including but not limited to:
- Develop and pitch new venture ideas
- Sam Dix - Co-Head of Startup Studio, Cornell Tech