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PAP Conference 2024 – Patient Assistance & Access Programs

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March 19-21, 2024
Pre-Conference Workshops on March 18, 2024Philadelphia Marriott Downtown | Philadelphia, PA

Ryan Sheedy
n/a at Rare Disease Parent and Caregiver
Speaker

Profile

Ryan Sheedy is a Dad, Rare Disease Caregiver and Founder. He lives in Bentonville, AR with his wife and 3 sons. In 2018, after 15+ years in Business Development and Fundraising he “retired” early to become a Stay at Home Dad/Caregiver for his twin sons.

One of his sons, Reynolds, was diagnosed with Costello Syndrome in 2018. Since birth Ryan has been Reynolds’ primary caregiver (100+ days in the NICU, countless surgeries and managing a 25+ person care team). He and his son’s rare journey and the countless families they have met along the way inspired him to create mejo.

mejo (short for 'me journal') is a web app that provides parents and caregivers with a better way to simplify, organize and share their child's most important medical + care information. Simple and easy to use, mejo helps caregivers save time, be prepared and champion better care.

Agenda Sessions

  • Advocacy and Engagement

    1:00pm
  • Advocacy and Engagement

    3:30pm

At this event