Speakers

Mackenzie Abramson

Senior Manager, Research Program Communications

Global Genes

Cheryl Allen

Founding Partner

Curatio Scientia Advisors

Shannon Ashmon, MBA

Lead, Patient Services – Oncology, US Market Access

Eisai, US

Liz Austin

Patient Foundation Head

Genentech

Nancy Bell

Vice President, Head of Market Access

Celcuity

Bruce Bloom

Chief Collaboration Officer

Healx

Larry Bressler

Senior Vice President, Global Value& Access, Rare Diseases

Chiesi

Robert Britting

Senior Director, US Customer Marketing, Vaccines Franchise

GSK

Justin Bush

General Manager and Head of Commercial, North America

Pharvaris

Daniel DeFabio

Director, Community Engagement

Global Genes

Chirag Desai, MBA, RPh

Director of Pharmacy Outcomes and Data Management

Baptist Health System

Nasha Fitter

Co-Founder and CEO

FoxG1 Research Foundation

Corey Ford, MHA

Vice President of Reimbursement and Policy Insights

Cencora

Shanelle Gabriel

Lupus Patient Advocate & Artist

Starting Something Productions, Inc

Megan Golden

Co-Founder and CEO

Mission: Cure

Michele Guadalupe

Director of Advocacy and Access

National Eczema Association

Chelsey Hathaway McCarthy

Executive Director

The DDX3X Foundation

Steven Hosier

Analytics Leader, System Pharmacy

Baptist Health System

Gjalt Huisman, PhD

Advisor to Baruch Future Ventures

Founder & CEO, Embold Therapeutics

Jonathan James

Chief Executive Officer

Hope Charities

Mindy Jones

Head of Specialty and Rare Disease Services

Biogen

Carina Kaiser

Senior Director Global Commercial Partnership Launch

Chiesi USA, Inc.

Aman Khera

Innovation Advisory Council Member

Vation Ventures

Connie Lee

CEO

Alliance to Cure Cavernous Malformation

Jin Lee

Investor

Oxford Angel Fund

Barry Liden

Director, Public Policy

USC Schaeffer Center for Health Policy and Economics

Jessica Longo

Director of Patient Support, Cardiometabolic and PAP

Novo Nordisk

Sunitha Malepati

Vice President

CACNA1A Foundation

Suzanne Marinakos

Director, Patient Support Operations, Patient Support Program- Rare Disease

Novo Nordisk

Craig Martin

Founder and CEO

Orphan Therapeutics Accelerator

Ben Matherne

Senior Director, Strategic Account Management

Biologics by McKesson

Mary McGowan, MHRM

CEO

Foundation for Scardiosis Research

Kimberly Moran

Senior Vice President, Head of Rare Diseases US

UCB

Amy Niles

Chief Mission Officer

PAN Foundation

Jeff Park

Senior Director, Pricing and Policy Strategy

Nuvation Bio

Neelay Patel

Pharmacy Outcomes Data Management Specialist

Baptist Health System

Priyal Patel

Pharmacy Data Intelligence Analyst

Baptist Health System

Chris Peetz

CEO

Mirum Pharmaceuticals

Terry Pirovolakis

CEO

Elpida Therapeutics

Kari Rosbeck

President & CEO

TSC Alliance

Johanna Rossell

Senior Vice President, General Manager, Rare Disease

Sumitomo Pharma America

Erin Santos-Primis

President

Isabella Santos Foundation

Karlie Sharma, Ph.D.

Program Director, Office of Drug Development Partnership Programs

National Center for Advancing Translational Sciences, National Institutes of Health

Alycia Shilton Lloyd

Executive Director, Hematology-Oncology, Patient Innovation & Engagement, Global Medical & Scientific Affairs

Merck

Tricha Shivas

Chief Strategy Officer

Foundation for Scardiosis Research

Bennett Smith

SVP, GM North America

Orchard Therapeutics

Allie Spica

Senior Conference Producer

Informa Connect

Harsh Swaminarayan

Pharmacy and Clinical Outcomes Coordinator

Baptist Health System

Ashira Vantree

Director Legal Strategy & Advocacy

Aimed Alliance

Yael Weiss

CEO

Mahzi Therapeutics

Richard Wilson

Vice President, North America, Rare Disease Franchise Head

Kyowa Kirin North America

Scott Winiecki

Lead Medical Officer

CDER/Food and Drug Administration