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December 2 - 4, 2020
Hyatt Regency Cambridge,
Cambridge, MA

Connect with Key Stakeholders and Propel Curative Progress, Orphan Product Success and Patient Advocacy

CBI/EBD Group’s Rare Disease Summit convenes industry, patient groups, investors and policy makers to unite in areas of unmet medical need and create life-transforming therapies and breakthroughs.

Take Advantage of our Advanced Pricing Discount...

Register by August 14, 2020 and Save $500!


As the COVID-19 situation is changing daily, we want you to feel totally confident about booking our events.

Highlighted Articles

Rare Disease Article Pack

We have made available a series of articles highlighting various topics in rare disease research and regulation, and some companies involved in innovative drug development.

Download the pack
Bruce L. Levine is a man you can thank for your future cell therapy

Catch up on Bruce L. Levine's research and outlook on cell and gene therapies, and the importance of partnerships in progressing the field.

Read the article


Patient and Caregiver Perspectives
Explore New Developments in Cures, Community, Collaboration and the Care Continuum for Patients and Caregivers

Science Luminaries 
Advancements in Gene Therapy that Are Tearing Down Barriers to Discovery in Rare Disease

Regulatory and Policy Update Address
Legislative Updates and New Initiatives within the FDA’s Orphan Drug Program

Focus on Funding
The Impact of Disruptive Investors, Drivers of Value and Funding Models for Success

Technology Spotlight 
Artificial Intelligence (AI) and Advanced Data Analytics — Reshaping Complex Diagnostics and Decision-Making in Rare Disease Drug Development

Download the 2020 Preview

See all the latest updates for CBI/EBD Group’s 2020 Rare Disease Summit.

Connect with Key Decision-Makers at the Rare Disease Summit

Whether you’re looking to generate quality leads, showcase thought leaders, or reinforce your brand, collaborate with us to identify custom sponsorship opportunities to help you reach your business objectives.

For more information about opportunities to reach a qualified audience, contact

2020 Scholarships Now Open!

The 2020 Summit Scholarships are awarded to rare disease patient organizations with 501(c)(3) tax-exempt status looking to attend the 2020 Rare Disease Innovation and Partnering Summit.