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Rare Disease Conference 2025 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Amy Niles
Chief Mission Officer at PAN Foundation
Speaker

Profile

Amy Niles is a knowledgeable healthcare executive with a passion for growing sustainable health organizations, advocating for patients, and building strategic partnerships to address public health needs. As PAN’s Chief Advocacy and Engagement Officer, she leads the organization’s relationships and partnerships with the patient advocacy and healthcare provider communities, while overseeing public policy and advocacy initiatives.

She developed the framework for PAN’s national advocacy platform in 2013 and has been leading the initiative ever since. As a result of her leadership and proactive analysis of the legislative and regulatory environment, external stakeholders and policymakers have come to view PAN as a thought leader and “go-to” resource. She has been quoted in The New York Times, TIME, and HuffPost, and she has authored and co-authored numerous opinion pieces and articles about Medicare reforms and affordability.

Amy believes that no one with a serious illness should have to worry about how to access and afford treatment. She is motivated every day by the knowledge that she is working to fill gaps in the nation’s healthcare system to support vulnerable populations, one person at a time.

She has previously helped lead successful startups and growth initiatives, including the Together Rx Access program. She co-founded, developed, and served as President and CEO of the National Women’s Health Resource Center (NWHRC), which grew into a national clearinghouse for women’s health information under her leadership. Amy has more than thirty years of experience in health nonprofit leadership, including strategy, external relations, and board governance, but her colleagues are most impressed by the way she leads with heart and her dedication to every person PAN serves.

Agenda Sessions

  • Moving the Needle on Awareness of the Medicare Part D Reforms

    9:15am