This site is part of the Informa Connect Division of Informa PLC

This site is operated by a business or businesses owned by Informa PLC and all copyright resides with them. Informa PLC's registered office is 5 Howick Place, London SW1P 1WG. Registered in England and Wales. Number 3099067.

Rare Disease Conference 2024 - Rare Disease Innovation & Partnership Summit
March 18-21, 2024
Philadelphia Marriott DowntownPhiladelphia, PA

Casey McPherson
Founder and President at To Cure A Rose Foundation


Casey McPherson is the Founder and President of To Cure a Rose Foundation, and Founder of Everlum Bio. Casey spent his career as a musician; touring the world and releasing two #10 hits in the US. Everything changed when his daughter was diagnosed with a rare genetic disease: HNRNPH2. Casey started To Cure a Rose Foundation to save his daughter Rose, and scale a better model for rare drug development. He then co-founded Everlum Bio, a personalized medicine company and proof of concept drug discovery lab to serve family foundations. Casey is on a mission to save his daughter and change the way we treat children across the rare disease spectrum. He and his two daughters live in Austin, TX.

Agenda Sessions

  • Breaking Down the Four Identified Rare Disease Landscapes

  • Reimagining Preclinical Drug Development for Rare Disease