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Rare Disease Conference 2024 - Rare Disease Summit
March 19-21, 2024
Pre-Conference Workshops on March 18, 2024Philadelphia Marriott Downtown | Philadelphia, PA

Casey McPherson
Founder and President at To Cure A Rose Foundation


Casey McPherson is the Founder and President of To Cure a Rose Foundation, and Founder of Everlum Bio. Casey spent his career as a musician; touring the world and releasing two #10 hits in the US. Everything changed when his daughter was diagnosed with a rare genetic disease: HNRNPH2. Casey started To Cure a Rose Foundation to save his daughter Rose, and scale a better model for rare drug development. He then co-founded Everlum Bio, a personalized medicine company and proof of concept drug discovery lab to serve family foundations. Casey is on a mission to save his daughter and change the way we treat children across the rare disease spectrum. He and his two daughters live in Austin, TX.

Agenda Sessions

  • Brain Storming Session - Hot Topic Break Down