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Rare Disease Conference 2025 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Chelsey Hathaway McCarthy
Executive Director at The DDX3X Foundation
Speaker

Profile

Chelsey McCarthy has over a decade of public relations, advocacy, and non-profit leadership experience. Prior to joining the DDX3X Foundation, she worked at the Alliance for Regenerative Medicine where she founded and ran all of the organization’s patient engagement programs. Chelsey started her career on Capitol Hill. She holds a B.S. in Public Relations and an M.S. in Integrated Marketing Communications, both from West Virginia University. Chelsey currently resides in her hometown in West Virginia with her husband and daughter.

Agenda Sessions

  • Funding the Fight – Patient Power in Driving Rare Disease Investment

    3:00pm