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Rare Disease Conference 2026 - Rare Disease Summit
March 17-19, 2026
Pre-Conference Workshops on March 16, 2026Sheraton Philadelphia Downtown | Philadelphia, PA

Christine Gustafson
Executive Director and CEO at TED Community Organization
Speaker

Profile

Christine Gustafson is the Founder, CEO, and Executive Director of the TED Community Organization, a global nonprofit dedicated to supporting those living with thyroid eye disease (TED). An “accidental leader,” Christine stepped into advocacy by simply trying to help fellow patients navigate the isolating and often overwhelming TED journey. Today, she leads an organization that unites patients, physicians, advocacy groups, and industry partners worldwide to foster education, support, and connection.

Agenda Sessions

  • Collaborating with Patient Advocacy Organizations to Elevate the Understanding of Disease Impact and Physician-Patient Communication

    2:45pm