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Rare Disease Conference 2025 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Connie Lee
CEO at Alliance to Cure Cavernous Malformation
Speaker

Profile

Connie Lee is the founder and CEO of Alliance to Cure Cavernous Malformation (ACCM), a patient research foundation serving those affected by the cerebrovascular disease cerebral cavernous malformation. Under her leadership over the last 23 years, ACCM has developed novel, strategic, equity programs with a focus on Hispanic, Black, and disabled patients. Additionally, ACCM works to support research toward the development of accessible and affordable treatments to prevent CCM-related brain hemorrhage and cavernous malformation lesion proliferation. ACCM is a partner in multiple mission-driven rare disease coalitions addressing equity in research and care.

Agenda Sessions

  • Breaking Barriers – A Journey toward Equity and Inclusion

    11:00am