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Rare Disease Conference 2024 - Rare Disease Summit
March 19-21, 2024
Pre-Conference Workshops on March 18, 2024Philadelphia Marriott Downtown | Philadelphia, PA

Mary McGowan, MHRM
CEO at Foundation for Sarcoidosis Research


Mary McGowan is the CEO of The Foundation for Sarcoidosis Research (FSR) and brings 35 years of nonprofit leadership and management. Prior to joining FSR, she served as Executive Director at The Myositis Association (TMA.) Prior to her time at TMA, Mary served as CEO of WomenHeart: The National Coalition for Women with Heart Disease. McGowan also served as Executive Director of the Allergy & Asthma Network, the leading nonprofit organization dedicated to eliminating suffering and death due to asthma, allergies and related conditions. She held various positions with the American Academy of Pediatrics during her service of 18 years.

Agenda Sessions

  • Innovating Rare Disease Clinical Trials – Boosting Inclusion and Achieving Commercial Success