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Rare Disease Conference 2024 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Mary Morlino
Patient Navigator at UDNF


Mary has over 16 years of personal and professional experience understanding the challenges patients and families face during an undiagnosed disease journey. She was diagnosed with Sarcoidosis, a multi-system rare disease, after a 7 year diagnostic odyssey. Previously, she worked at Global Genes and The EveryLife Foundation for Rare Diseases collaborating with patients, patient advocacy organizations, researchers, medical professionals, legislative representatives and other changemakers to identify and develop initiatives to enact improvements for the patient lived experience. Mary is also the founder of MarylandRARE, she is passionate about helping others on their unique journeys to find answers, resources and opportunities to improve their quality of life.

Agenda Sessions

  • Combatting Mental Health Challenges when Living with a Rare Disease