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Rare Disease Conference 2025 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Nasha Fitter
Co-Founder and CEO at FoxG1 Research Foundation
Speaker

Profile

Nasha Fitter co-founded the FOXG1 Research Foundation shortly after her daughter Amara was diagnosed. Nasha is a leader in the rare disease space through her work on utilizing real world evidence to accelerate treatments. She co-founded and is the Chief Business Officer at Citizen, a patient-directed healthcare platform for rare and complex diseases. Nasha is also on the board of the Buffalo Initiative and has an MBA from the Harvard Business School.

Agenda Sessions

  • Funding the Fight – Patient Power in Driving Rare Disease Investment

    3:00pm