This site is part of the Informa Connect Division of Informa PLC

This site is operated by a business or businesses owned by Informa PLC and all copyright resides with them. Informa PLC's registered office is 5 Howick Place, London SW1P 1WG. Registered in England and Wales. Number 3099067.

Rare Disease Conference 2026 - Rare Disease Summit
March 17-19, 2026
Pre-Conference Workshops on March 16, 2026Sheraton Philadelphia Downtown | Philadelphia, PA

Nasha Fitter
Co-founder and CBO at Citizen Health, Co-Founder and CEO at FoxG1 Research Foundation
Speaker

Profile

Nasha Fitter co-founded the FOXG1 Research Foundation shortly after her daughter Amara was diagnosed. Nasha is a leader in the rare disease space through her work on utilizing real world evidence to accelerate treatments. She co-founded and is the Chief Business Officer at Citizen, a patient-directed healthcare platform for rare and complex diseases. Nasha is also on the board of the Buffalo Initiative and has an MBA from the Harvard Business School.

Agenda Sessions

  • Funding the Fight – Patient Power in Driving Rare Disease Investment

    3:00pm
  • Funding Think Tank

    4:15pm