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Rare Disease Conference 2024 - Rare Disease Summit
March 19-21, 2024
Pre-Conference Workshops on March 18, 2024Philadelphia Marriott Downtown | Philadelphia, PA

Patrick Collins
Vice President, Corporate Relations at NORD


Patrick Collins has joined NORD in the new position as Vice President of Corporate Relations as of July 2023. Prior to joining NORD, Patrick was employed at CSL Behring for 22 years, building that company’s US government affairs and external relations program. This included the implementation of public policy strategies to ensure access for patients to rare disease therapies, plasma protein therapies and their substitutes.

Prior to CSL Behring, Patrick was Director of Government Relations for the National Hemophilia Foundation. His proudest professional moment was the role he played in securing the congressional passage and funding of the $750M Ricky Ray Hemophilia Relief Act – legislation providing a one-time payment of $100,000 to individuals or families of those with hemophilia who contracted HIV using contaminated blood clotting factor.

A New York City native, Patrick worked early in his career as a liaison to the New York City Council for a mayoral agency and served on the staff of the Chairman of the New York State Senate Insurance Committee. He graduated from St. John’s University in New York City with a bachelor’s and master’s degree.

When not watching his beloved New York Yankees or waxing poetic about the greatness of 1980’s music and movies, Patrick enjoys spending quality time with his wife Christi and nine-year old daughter Riley.

Agenda Sessions

  • Exploring Actions to Improve the Rare Disease Diagnostic Journey and Advance Health Equity