This site is part of the Informa Connect Division of Informa PLC

This site is operated by a business or businesses owned by Informa PLC and all copyright resides with them. Informa PLC's registered office is 5 Howick Place, London SW1P 1WG. Registered in England and Wales. Number 3099067.

Rare Disease Conference 2024 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Rebecca Stewart
CEO at Rare Revolution Magazine
Speaker

Profile

Rebecca is the co-founder of NRG Collective Ltd, who produce RARE Revolution Magazine, RARE Youth Revolution and TIDE Patient Engagement. Rebecca has channeled a community approach to realising meaningful, accessible resources and the power of education through compelling story telling. Through the development of the company’s “safe hands” approach, Rebecca is committed to steering responsible and sensitive journalism and is active in driving this message forward. Rebecca is also co-founder and trustee of Action for XP, a charity supporting those with the ultra-rare condition xeroderma pigmentosum, supporting people internationally with vital protective equipment, education and health and well-being programmes.

Agenda Sessions

  • Strengthening Patient Relationships Authentically to Enhance Care and Trust

    1:05pm