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Rare Disease Conference 2026 - Rare Disease Summit
March 17-19, 2026
Pre-Conference Workshops on March 16, 2026Sheraton Philadelphia Downtown | Philadelphia, PA

Susan Stein, MPH
Founder and Principal at Patient Strategy Group
Speaker

Profile

Susan Stein is the Founder of Patient Strategy Group, a boutique consulting practice that partners with life science leaders to build the patient strategy architecture that transforms insight into defensible business decisions.

With 25+ years in life sciences, Susan has served in senior patient advocacy leadership roles inside global pharmaceutical and biotech organizations across oncology and rare disease. She has launched therapies, built and led global patient engagement frameworks, and embedded patient voice into decision-making at the highest levels of the industry.

As founder of Connexion Healthcare, she brings rare entrepreneurial depth alongside her in-house experience.

Susan's mission: to help life sciences leaders move from patient engagement as an activity to patient strategy as a leadership imperative.

From Patient Insight to Impact.

Agenda Sessions

  • Walking the Tightrope – A Retrospective View of Sarepta’s High-Stakes Journey Through Rare Disease Innovation

    4:15pm

At this event