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Rare Disease Conference 2024 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Tricha Shivas
Chief Strategy Officer at Foundation for Sarcoidosis Research


Tricha Shivas joined the Foundation for Sarcoidosis Research (FSR) in December of 2020. As the Chief Strategy Officer, she works with various stakeholders including individuals living with sarcoidosis. Through her career she has built strong stakeholder relations, created comprehensive patient engagement and awareness programming, developed robust diversity, inclusion, and equity programming, worked with the NIH, FDA, and industry to expand therapeutic pipelines and to increase patient centricity in drug develop, and worked with the CDC, HHS, regulators, and state and federal legislators to improve national health policy strategies, patient access to care, and healthcare quality measures.

Agenda Sessions

  • Thinking Outside the Box – Forming Unique Partnerships within Rare Disease