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Rare Disease Innovation & Partnership Summit
March 21-23, 2023
Delivered as a Hybrid EventPhiladelphia Marriott Downtown

Wes Michael
President at Rare Patient Voice

Profile

Wes Michael founded Rare Patient Voice in 2013 to give patients and family caregivers with rare diseases the opportunity to voice their opinions in research studies. This year the company celebrates its tenth anniversary. Rare Patient Voice has now conducted thousands of studies and rewarded patients and family caregivers with over $10 million for their participation. Many have been recruited in person by Wes and his team at patient events and through a robust referral program with patient advocacy and support groups. Rare Patient Voice now covers non-rare as well as rare diseases and conditions and has expanded from the United States to Canada, the United Kingdom, France, Germany, Italy, Spain, Australia, and New Zealand.

Before launching Rare Patient Voice, Wes worked for healthcare market research firm Kantar Health. He previously was a brand manager and market research manager at McCormick (the spice company) and General Mills (working on Wheaties, Total and Kix cereals). He has a BA from the University of Pennsylvania (with a year at Edinburgh University) and an MBA from the University of Chicago.

Wes lives outside Baltimore, Maryland, with his wife, Cathy, children Julia and Cliff, grandson Taylor, and dogs Ace and Stanley.

Agenda Sessions

  • Boosting the Appeal of Clinical Trials- Making Participation of Greater Interest to Patients

    2:20pm