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Rare Disease Conference 2024 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Lilly Stairs
Founder and Board Chair at Patient Authentic and Autoimmune Association


Lilly Stairs is an internationally recognized patient advocate, serial entrepreneur, philanthropist, and sought after speaker.

Her purpose was ignited in a hospital bed after being diagnosed with multiple autoimmune diseases.

Lilly is the Founder of Patient Authentic, a boutique consultancy that helps healthcare organizations build events and experiences for patient advocates. She is also the Founder of the Chronic Boss Collective, a networking membership for ambitious business women living with chronic conditions designed to help them dream big in their career and prioritize health with no trade-offs.

Lilly serves as the Board Chair of the Autoimmune Association, the world's foremost non-profit leading the fight against autoimmunity and a Board Member for the Brain Cancer Research Alliance.

Agenda Sessions

  • Optimizing Industry and Advocacy Collaboration to Best Serve the Patient