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Rare Disease Conference 2024 - Rare Disease Summit
March 19-21, 2024
Pre-Conference Workshops on March 18, 2024Philadelphia Marriott Downtown | Philadelphia, PA

Mary Anne Meskis
Executive Director at Dravet Syndrome Foundation
Speaker

Profile

Mary Anne is a founding member and the Executive Director of the Dravet Syndrome Foundation. She is a passionate advocate for the Dravet syndrome and rare epilepsy communities and has served on various working groups and industry advisory panels since her son was first diagnosed in 2004. While under her direction, DSF has placed a focus on research, as well as patient community engagement and education. She currently resides in western North Carolina with her husband and the youngest of her three children, Elliot, who has Dravet syndrome.

Agenda Sessions

  • Strengthening Patient Relationships Authentically to Enhance Care and Trust

    1:05pm
  • Call to Action

    4:00pm