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Rare Disease Conference 2024 - Rare Disease Summit
March 18-20, 2025
Pre-Conference Workshops on March 17, 2025Sheraton Philadelphia Downtown | Philadelphia, PA

Sarita Edwards
Founder, CEO and President at E.WE Foundation


Sarita Edwards is the CEO & President at the E.WE Foundation, a global healthcare advocacy organization for rare diseases. Sarita began her efforts of advocacy and public policy after receiving an in utero rare genetic diagnosis for her son Elijah. Sarita is a 2021 world's top patient expert and social health ambassador. She is an award winning advocate, global speaker, and host of the Being Rare Podcast. Sarita has a Bachelor of Science in Health Science, a Masters in Healthcare Administration, and is certified in Mental Health First Aid Instruction. Sarita lives in North Alabama with her husband and children.

Agenda Sessions

  • Thinking Outside the Box – Forming Unique Partnerships within Rare Disease