Delivered as a Hybrid Event December 6 - 10, 2021
In-Person: December 6-7 | Virtual: December 9-10Boston, MAON‑DEMAND ◎ SESSIONSkeyboard_arrow_right
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ON‑DEMAND ◎ SESSIONS - All Times are EST
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ON‑DEMAND ◎ SESSIONS - All Times are EST
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On Demand
SCIENTIFIC LUMINARY KEYNOTE
Targeting the Morphological Impact of Disease
- Marzieh Haghighi, PhD - Postdoctoral Associate, Broad Institute of Harvard and MIT
On Demand
GLOBAL DRUG DEVELOPMENT & ACCESS
Address Challenges in EU Market Access and Value Demonstration
- Anita Burrell - Principal, Anita Burrell Consulting;
On Demand
PATIENT ENGAGEMENT, ADVOCACY & ALLIANCE MANAGEMENT
Elevate Patient Engagement through Improved Access to Clinical Trial Information
- Joan Chambers - Senior Director, Marketing & Outreach, Center for Information & Study on Clinical Research Participation (CISCRP)
On Demand
PATIENT ENGAGEMENT, ADVOCACY & ALLIANCE MANAGEMENT
Develop High-Impact Collaborations Between Advocates and Manufacturers
- Kristin Smedley - Founder, Curing Retinal Blindness Foundation
On Demand
PATIENT ENGAGEMENT, ADVOCACY & ALLIANCE MANAGEMENT
Improving Clinical Trials with Patients for Better Results
- Deborah Collyar - President, Patient Advocates In Research (PAIR)
On Demand
Orphan Drug Development Projects: Short Bowel Syndrome & Pediatric Congenital Diarrheal Disease
- Lisa Conte - President & CEO, Jaguar Health, Inc.
On Demand
PATIENT-DRIVEN PROGRESS
Bringing Data Back to Patients — Empowering Patients through Track I Data Sharing
- Christian Rubio - Vice President, Community Development & Engagement, Global Genes
- Vanessa Vogel-Farley - R&D Strategy Lead, RARE-X
On Demand
PATIENT-DRIVEN PROGRESS
Delve Into Opportunities to Track I Engage as Advocates in Early Clinical Development
- Amy Gray - CEO, Charcot-Marie-Tooth Association
On Demand
PATIENT-DRIVEN PROGRESS
Telling Rare Stories
- Keith McArthur - Chief Executive Officer and Head of Science, CureGRIN Foundation
- Alexi Pappas, Rare Disease Advocate
- Sanath Kumar Ramesh - Founder, CureGPX4.org
On Demand
REIMBURSEMENT, VALUE AND ACCESS
Proactively Develop HEOR and RWE to Support Value Demonstrations
- Nanxin (Nick) Li, PhD, MBA - Senior Director, Health Economics and Outcomes Research (HEOR), uniQure
On Demand
REIMBURSEMENT, VALUE AND ACCESS
Discuss Value-Based Agreements and Other Evolving Reimbursement Pathways
- Joseph Fuhr, PhD - Professor Emeritus of Economics, Widener University
On Demand
REIMBURSEMENT, VALUE AND ACCESS
Using AI to Find Patients in Rare and Under-Diagnosed Diseases
- Joseph Zabinski, PhD - Senior Director, AI & Precision Medicine, OM1
On Demand
NEW LAUNCH & COMMERCIALIZATION
Leverage Social Media for Better Patient Insights into Treatment and Drug Development
- Maria Picone - Founder/CEO, TREND.Community
On Demand
PARTNERING, INVESTMENT & PORTFOLIO STRATEGY
Evaluate New and Emerging Markets to Stay on the Cutting Edge
- Brian Goodman, PhD - Principal, MPM Capital, Inc.