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Pre-Conference Workshops - ET (Eastern Time, GMT-05:00)
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Pre-Conference Workshops - ET (Eastern Time, GMT-05:00)
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12:00pm - 1:00pm
Pre-Conference Workshop and Registration
Showing 3 of 3 Streams
Advocacy and Engagement
Alternative Funding Programs
Product Launch and Commercialization
1:00pm - 1:05pm
Workshop Introduction and Overview
1:05pm - 2:00pm
Strengthening Patient Relationships Authentically to Enhance Care and Trust
- Jennifer Helfer - Senior Director, Patient Advocacy & Engagement, Corporate Affairs, Viridian Therapeutics, Inc.
- Mary Anne Meskis - Executive Director, Dravet Syndrome Foundation
- Elsa Lavita - Director, Patient Advocacy, MorphoSys
- Rebecca Stewart - CEO, Rare Revolution Magazine
2:00pm - 3:00pm
The How To Behind Partnership, Funding and Development
- Amanda Moore - CEO, Angelman Syndrome Foundation
- Ryan Sheedy, Rare Disease Parent and Caregiver
1:00pm - 1:05pm
Workshop Introduction and Overview
1:05pm - 2:00pm
The Basics of Alternative Funding Programs
- Dawn Holcombe, MBA FACMPE ACHE - President, DGH Consulting
2:00pm - 3:00pm
Panel Discussion on Industry Impact and Response
- Liz Austin - Patient Foundation Head, Genentech
- Dawn Holcombe, MBA FACMPE ACHE - President, DGH Consulting
- Amy Niles - Chief Mission Officer, PAN Foundation
1:00pm - 1:05pm
Workshop Introduction and Overview
1:05pm - 3:00pm
Ensure a Comprehensive and Effective Launch Strategy
- Frank Jaeger - Consultant, Nanodose Therapeutics, Inc.
3:00pm - 3:30pm
Networking and Refreshment Break
Showing 3 of 3 Streams
Advocacy and Engagement
Alternative Funding Programs
Product Launch and Commercialization
3:30pm - 4:00pm
Regulatory and Legislative Considerations
- Paul Melmeyer - Vice President, Public Policy and Advocacy, Muscular Dystrophy Association
4:00pm - 5:00pm
Call to Action
- Mary Anne Meskis - Executive Director, Dravet Syndrome Foundation
- Paul Melmeyer - Vice President, Public Policy and Advocacy, Muscular Dystrophy Association
- Jennifer Helfer - Senior Director, Patient Advocacy & Engagement, Corporate Affairs, Viridian Therapeutics, Inc.
3:30pm - 5:00pm
Think Tank Discussion
- Dawn Holcombe, MBA FACMPE ACHE - President, DGH Consulting
3:30pm - 4:30pm
Integrating Patient Support Models into Your Launch Strategy
- Rhonda Hughes - Head, Patient Services, Biogen
- Kelley O'Leary - Director of New Product Planning, Innovation and Strategy Patient Services, Biogen
5:00pm - 5:05pm
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