DAY 1 ✦ LIVE: Tue, Dec 1Tuesday, 1 December 2020 - All Times are EST

10:30am - 10:45am15 mins

INFORMA CONNECT-CBI AND CHAIRPERSON’S WELCOMING REMARKS

10:45am - 11:45am60 mins

PATIENT SPOTLIGHT ● CHASING MY CURE

David Fajgenbaum, MD - Co-founder and Executive Director, Castleman Disease Collaborative Network

11:45am - 12:30pm45 mins

EXPLORE THE CRITICAL ROLE PATIENT ADVOCACY PLAYS IN DRUG DEVELOPMENT

12:30pm - 1:45pm75 mins

Take Time Throughout the Day for Virtual Networking with Peers and Listen to On-Demand Sessions

1:45pm - 2:30pm45 mins

PANEL ● IDENTIFY COMMON OBSTACLES IN COMPLIANT ENGAGEMENT OF PATIENTS, ADVOCATES AND CAREGIVERS

Rahul Khara, PharmD - Vice President, Legal and Chief Compliance Officer, Acceleron Pharma Inc.
Jennifer Helfer - former Director, Global Patient Advocacy Lead, bluebird bio
Lilly Stairs - Founder & Principal, Patient Authentic

CHOOSE BETWEEN FOUR CONCURRENT FEATURED TRACK SESSIONS (I-IV):

2:45pm - 3:30pm45 mins

Examine Opportunities to Repurpose Current Drugs and Therapies for Rare Diseases

Candace Lerman, JD - Founder, Rare Candace
Monica Weldon - Founder/CEO, Bridge the Gap – SYNGAP Education and Research Foundation
Courtney Waller - Co-Founder/Co-Director, Timothy Syndromes Alliance
Sean Ekins - CEO, Collaborations Pharmaceuticals

2:45pm - 3:30pm45 mins

Deploy Strategic Needs Assessments for Effective Reimbursement Planning and Launch

2:45pm - 3:30pm45 mins

Develop Key Partnerships and Channel Strategies for Product Launch

Nick Calla - Senior Vice President, Industry Relations, Orsini Specialty Pharmacy
David Frobel - Senior Vice President, Trade Relations, Orsini Specialty Pharmacy

2:45pm - 3:30pm45 mins

Examine the Current State of Rare Disease Clinical Development and Future Predictions