Delivered as a Hybrid Event December 6 - 10, 2021
In-Person: December 6-7 | Virtual: December 9-10Boston, MAkeyboard_arrow_right
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DAY 1 ✦ LIVE: Tue, Dec 1 - All Times are EST
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DAY 1 ✦ LIVE: Tue, Dec 1 - All Times are EST
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10:30am - 10:45am15 mins
INFORMA CONNECT-CBI AND CHAIRPERSON’S WELCOMING REMARKS
- Jenna Cerulli - Conference Producer, Informa Connect
- John Maslowski - Chief Executive Officer, Castle Creek Biosciences
10:45am - 11:45am60 mins
PATIENT SPOTLIGHT ● CHASING MY CURE
- David Fajgenbaum, MD - Co-founder and Executive Director, Castleman Disease Collaborative Network
11:45am - 12:30pm45 mins
EXPLORE THE CRITICAL ROLE PATIENT ADVOCACY PLAYS IN DRUG DEVELOPMENT
- Robert Coughlin - President and CEO, Massachusetts Biotechnology Council
12:30pm - 1:45pm75 mins
Take Time Throughout the Day for Virtual Networking with Peers and Listen to On-Demand Sessions
1:45pm - 2:30pm45 mins
PANEL ● IDENTIFY COMMON OBSTACLES IN COMPLIANT ENGAGEMENT OF PATIENTS, ADVOCATES AND CAREGIVERS
- Rahul Khara, PharmD - Vice President, Legal and Chief Compliance Officer, Acceleron Pharma Inc.
- Jennifer Helfer - former Director, Global Patient Advocacy Lead, bluebird bio
- Lilly Stairs - Founder & Principal, Patient Authentic
CHOOSE BETWEEN FOUR CONCURRENT FEATURED TRACK SESSIONS (I-IV):
2:45pm - 3:30pm45 mins
Examine Opportunities to Repurpose Current Drugs and Therapies for Rare Diseases
- Candace Lerman, JD - Founder, Rare Candace
- Monica Weldon - Founder/CEO, Bridge the Gap – SYNGAP Education and Research Foundation
- Courtney Waller - Co-Founder/Co-Director, Timothy Syndromes Alliance
- Sean Ekins - CEO, Collaborations Pharmaceuticals
2:45pm - 3:30pm45 mins
Deploy Strategic Needs Assessments for Effective Reimbursement Planning and Launch
- Kim Coppom - Executive Director, Managed Markets, Relypsa
- Jen Beachell - Vice President, Commercial, Momenta Pharmaceuticals
- John Wiedemann - Director, Patient Support Services, Retrophin
2:45pm - 3:30pm45 mins
Develop Key Partnerships and Channel Strategies for Product Launch
- Nick Calla - Senior Vice President, Industry Relations, Orsini Specialty Pharmacy
- David Frobel - Senior Vice President, Trade Relations, Orsini Specialty Pharmacy
2:45pm - 3:30pm45 mins
Examine the Current State of Rare Disease Clinical Development and Future Predictions
- Mike Zhao - Vice President, Healthcare, MSQ Ventures
- Chris Garabedian - Chairman and CEO, Xontogeny
- Sara Nayeem, MD - Partner, NEA