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DAY 1 ✦ LIVE: Tue, Dec 1 - EST

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DAY 1 ✦ LIVE: Tue, Dec 1 - EST

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10:30am - 10:45am15 mins
INFORMA CONNECT-CBI AND CHAIRPERSON’S WELCOMING REMARKS
  • Jenna Cerulli - Conference Producer, Informa Connect
  • John Maslowski - Chief Executive Officer, Castle Creek Biosciences
10:45am - 11:45am60 mins
PATIENT SPOTLIGHT ● CHASING MY CURE
  • David Fajgenbaum, MD - Co-founder and Executive Director, Castleman Disease Collaborative Network
11:45am - 12:15pm30 mins
EXPLORE THE CRITICAL ROLE PATIENT ADVOCACY PLAYS IN DRUG DEVELOPMENT
  • Robert Coughlin - President and CEO, Massachusetts Biotechnology Council
12:15pm - 2:00pm105 mins
Take Time Throughout the Day for Virtual Networking with Peers and Listen to On-Demand Sessions
    2:00pm - 2:45pm45 mins
    PANEL ● IDENTIFY COMMON OBSTACLES IN COMPLIANT ENGAGEMENT OF PATIENTS, ADVOCATES AND CAREGIVERS
    • Rahul Khara, PharmD - Vice President, Legal and Chief Compliance Officer, Acceleron Pharma Inc.
    • Jennifer Helfer - former Director, Global Patient Advocacy Lead, bluebird bio
    • Lilly Stairs - Founder & Principal, Patient Authentic
    CHOOSE BETWEEN FOUR CONCURRENT FEATURED TRACK SESSIONS (I-IV):
    2:45pm - 3:30pm45 mins
    Examine Opportunities to Repurpose Current Drugs and Therapies for Rare Diseases
    • Candace Lerman, JD - Founder, Rare Candace
    • Monica Weldon - Founder/CEO, Bridge the Gap – SYNGAP Education and Research Foundation
    • Courtney Waller - Co-Founder/Co-Director, Timothy Syndromes Alliance
    • Sean Ekins - CEO, Collaborations Pharmaceuticals
    2:45pm - 3:30pm45 mins
    Deploy Strategic Needs Assessments for Effective Reimbursement Planning and Launch
    • Kim Coppom - Executive Director, Managed Markets, Relypsa
    • Jen Beachell - Vice President, Commercial, Momenta Pharmaceuticals
    • John Wiedemann - Director, Patient Support Services, Retrophin
    2:45pm - 3:30pm45 mins
    Develop Key Partnerships and Channel Strategies for Product Launch
    • Nick Calla - Senior Vice President, Industry Relations, Orsini Healthcare
    • David Frobel - Senior Vice President, Trade Relations, Orsini Specialty Pharmacy
    2:45pm - 3:30pm45 mins
    Examine the Current State of Rare Disease Clinical Development and Future Predictions
    • Mike Zhao - Vice President, Healthcare, MSQ Ventures
    • Chris Garabedian - Chairman and CEO, Xontogeny
    • Sara Nayeem, MD - Partner, NEA
    ON‑DEMAND ◎ SESSIONS
    NextDAY 2 ✦ LIVE: Wed, Dec 2
    Choose Day