Day 1, Tuesday, March 18th, 2025 - ET (Eastern Time, GMT-05:00)
- Allie Spica - Senior Conference Producer, Informa Connect
Explore the transformative dynamics shaping healthcare coverage and access in 2025, with a special focus on the most pressing trends and issues that are set to redefine the industry.
- Gauge the impact of the November 2024 elections on the direction of health policy at the federal level, especially as it relates to the Inflation Reduction Act and Affordable Care Act
- Gain insights into the evolving regulatory environment, including updates on the Part D benefit redesign and rollout of the Medicare Prescription Payment Plan
- Assess the continued prevalence of payer and employer models restricting the use of manufacturer-sponsored financial assistance
- Discuss potential policy solutions and strategies to address the barriers to healthcare access
- Corey Ford, MHA - Vice President of Reimbursement and Policy Insights, Cencora
In fall 2024, the PAN Foundation conducted national polling that illuminated a sobering statistic: 87% of Medicare beneficiaries had not seen, read, or heard anything about the Medicare Part D reforms to take effect January 1, 2025. The PAN Foundation has since led a national education effort to shift that statistic—and subsequently polled people with Medicare again in 2025 to measure the impact of educational outreach.
In this session:
Gain access to new research and insights on the current state of awareness among Medicare beneficiaries of the Part D cap and Medicare Prescription Payment Plan—and the role of education in shifting that awareness
Learn more about national educational efforts intended to increase awareness, knowledge and ultimately, patients’ ability to make empowered decisions around their healthcare
Discuss practical strategies to ensure patients know about these reforms, increase health literacy and provide access to high quality and culturally competent health information
- Amy Niles - Chief Mission Officer, PAN Foundation
Diagnosed with Lupus in 2004, Shanelle has dedicated her life to raising awareness, amplifying patient voices and pushing for greater diversity in healthcare. With spoken word and musical performances on global stages like Lincoln Center to the Vatican and advocacy work spanning from Capitol Hill to clinical trial awareness, Shanelle brings a unique perspective to the patient experience. As a member of the Lupus Voices Council and a celebrated artist, Shanelle will share her powerful journey of resilience, creativity and the role of art in patient engagement.
- Shanelle Gabriel - Lupus Patient Advocate & Artist, Starting Something Productions, Inc
In this exclusive roundtable, industry leaders will dive deep into how patient access needs are being assessed and the critical role affordability plays in shaping healthcare decisions. With a focus on real-world strategies and emerging trends, explore how data-driven insights are informing policy, operational changes and innovative approaches to patient support.
- Shannon Ashmon, MBA - Lead, Patient Services – Oncology, US Market Access, Eisai, US
- Liz Austin - Patient Foundation Head, Genentech
- Jessica Longo - Director of Patient Support, Cardiometabolic and PAP, Novo Nordisk
- Jeff Park - Senior Director, Pricing and Policy Strategy, Nuvation Bio
- Nancy Bell - Vice President, Head of Market Access, Celcuity
- Larry Bressler - Senior Vice President, Global Value& Access, Rare Diseases, Chiesi
- Kimberly Moran - Senior Vice President, Head of Rare Diseases US, UCB
A Visionary's Journey – An Intimate Conversation with a Rare Disease Leader
Join us for an intimate conversation with Chris Peetz to discover the challenges and rewards of leading a company focused on bringing innovative treatments to the rare market. From his entrepreneurial journey to his experiences as an executive in the pharmaceutical industry, uncover his inspiring pursuit of innovation as well as his valuable perspective on the future of rare disease.
- Chris Peetz - CEO, Mirum Pharmaceuticals
This session will explore the complex interplay of the various stakeholders involved in bringing rare disease therapies to market.
Increase understanding of the unique challenges and opportunities associated with rare disease commercialization
Foster collaboration and communication among key stakeholders in the rare disease community
Explore strategies for improving access to innovative treatments for patients with rare diseases
- Bennett Smith - SVP, GM North America, Orchard Therapeutics
Explore the future of rare disease care in this forward-thinking session, highlighting the critical importance of patient-centric engagement powered by cutting-edge technology. This session underscores a holistic, technology-driven approach to improving outcomes and elevating the quality of life for those living with rare diseases.
- Learn how interdisciplinary collaboration and specialty pharmacies come together to address the unique challenges of rare diseases
- Discover how leveraging innovative technologies enhances patient engagement, optimizes care delivery, and supports adherence, ultimately meeting the individualized needs of patients and their families
- Ben Matherne - Senior Director, Strategic Account Management, Biologics by McKesson
- Mindy Jones - Head of Specialty and Rare Disease Services, Biogen
- Cheryl Allen - Founding Partner, Curatio Scientia Advisors
The dynamic between industry and advocacy has evolved significantly, only increasing the need for innovative collaboration approaches to optimize patient outcomes.
Benchmark best practices for fostering high-impact collaborations and explore successful models of partnership
Gain insights on how to quantify the value of advocacy contributions and benchmark innovative initiatives to drive future collaborations
Equip your organization with tools to build more effective and impactful partnerships
- Tricha Shivas - Chief Strategy Officer, Foundation for Scardiosis Research