Unite with the rare disease community to create powerful partnerships, advance orphan therapeutics and deliver life-changing breakthroughs
The Rare Disease Summit connects key stakeholders to drive therapeutic progress, propel commercial strategies and inspire impactful advocacy. You’ll generate solution-focused approaches surrounding patient access, reimbursement, commercialization, launch, partnering and more, as you unify in areas of unmet medical need.
Have a profound impact on the Rare Disease Community
While the industry has seen growth and heightened focus around the pursuit of orphan products and rare therapies, we’ve only scratched the surface. Benefit from high-impact content from experts from across the rare disease industry:
Innovative Approaches to Amplify Collaboration and Advancement
Uncover innovative solutions to issues alongside the top industry experts committed to shaping the future of Rare Disease
- Navigate FDA Updates on Rare Disease Product Development
- Helpful or Harmful – Using AI in the Rare Disease Space
- Unlocking Rare Disease Investment Success through Valuation, Risk and Innovation
- Innovation Called and Gene Therapy Answered
Riveting Keynotes and Ground-Breaking Panels to Deliver Fresh Perspectives
Join market leaders setting the stage for game-changing dialogue
- The Importance of Funding and Partnering from the Perspective of an Early Stage BioPharma Company
- Exploring the Terrain - Rare Disease Landscape from a Payer Perspective
- Thinking Outside the Box – Forming Unique Partnerships within Rare Disease
- Rare Caregivers Report—Experiences Supporting Loved Ones Living with Rare Diseases
A Collaborative Think Tank to Benchmark and Strategize on the Top Challenges in Rare Disease
The all-plenary design of this event enables for more meaningful interaction, higher level networking and closer up learning
- Hear multiple keynote addresses featuring key stakeholder perspectives, including Industry, Advocacy and Regulatory
- Have dedicated time to brainstorm with your peers on innovative ideas surrounding the different phases of Rare Disease Drug Development (ie. diagnosis, preclinical, drug development, regulatory)
- Engage in our Innovation Station to hear rapid fire presentations from the key innovators within the Rare Disease space
- Be able to take home with you new connections, new ideas and new best practices
Their Passion is RARE: Meet the 2024 Rare Disease Conference Thought Leaders
Attendees will hear directly from those who have designed and led innovative approaches to complex challenges in driving curative progress
Regulatory Affairs, North America
I thought this was one of the best conferences I’ve attended over the years. The focus was very practical and each speaker shared real world examples instead of theory. It was well organized and the passion each participant has for helping people with rare disease was very evident.
Rare Disease Innovation & Partnership Summit: Part of Access USA
Hundreds from the access community came together last year as three industry-leading events united under one roof for compelling discussions, industry benchmarking and extended networking. What happened? Click play to see 2023 event highlights and why you can't miss the 2024 event!
See Who You'll Meet at the Rare Disease Summit
You will benefit from attending this event if you work for a company that focuses on rare disease and orphan drugs and have responsibilities or involvement in the following areas:
This event will also benefit consultants and solution providers who provide services in the rare disease space.
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Connect and Network with Key Decision-Makers at the Rare Disease Summit
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